Live With It


The concerns of an Alzheimer’s caregiver are many.  Safety of their patient (mental safety, physical safety) is paramount, but there are others – are they getting enough to eat and is it nutritionally satisfying; are they sleeping; what is their mental state (because, you know, an unhappy Alzheimer’s patient can be a whole other type of Hell); am I doing everything I can to provide (while I can) an enriching life.  There are additional concerns, obviously, too numerous to mention, not the least of which is, hey, am I remembering to take care of myself?

There’s one concern…one fear…that’s not often mentioned, though; not in support groups or literature on the disease.  It lurks in the depths of your mind, running rat-like in circles, gnawing at the inside of your skull.  It takes an especially vicious bite every time you misplace your keys or forget to do something.

What if this happens to ME?

It’s a legitimate fear.  Alzheimer’s can strike anyone.  It’s particularly frightening to those with family members suffering from the disease because it tends to run in families, particularly through the matrilinear line.  Hooray.

Like most people, I never gave much thought to my occasional mental lapses.  I mean, it happens to everyone, right?  We all have those DUH! moments when we wonder just what the heck is the matter with us.  But when someone  you know has Alzheimer’s, those moments take on a whole new ominous overtone, colored like the bruised underside of a thunderhead.

I’ve had two such lapses in the recent past.  A few weeks ago, I took my cell phone in to AT&T because I was having issues with it, and when the service person asked me to key in my code to unlock the phone…I couldn’t remember it.  Blanked it.  Totally.  Not in a smidgen of a clue.  I left the store shaken, drove home in tears.  It finally came to me on the drive (what a relief!), but the episode scared the crap out of me because it left me with the exact impression of what my mother has described:  “It’s like the inside of my mind goes white.”

Terrifying.

The other episode was yesterday when I went to write a business letter and could not for the life of me remember the correct format.  Did the return address go above or below the date?  I’ve written countless business letters.  I should know this by rote, but the brain stalled, leaving me staring at the computer screen in confusion and…yes…fear.

Are these normal lapses?  God, I hope so.  But I’m only 57.  Seems a bit early to me.  Then again….wasn’t Mom in her 50s the first time I noticed a marked episode of forgetfulness?

Am I blowing this out of proportion?  Who knows?  I’m watchful now, though, because if — God forbid — this is the road I’m set to go down, I want to arm myself with as much knowledge as I can rather than be waylaid as my parents were.  I want to fight the fear, turn it inside out, make it work for me instead of against.

But, yeah, I’m scared.

Advertisements

About Melissa Crandall

Longer ago than I care to admit--although I will--I cut my writing teeth on fanzines and media tie-in novels. Since then, I've moved on to narrative nonfiction, speculative fiction, and essays. I write to explore and understand the world around me, the things I see and experience nearby or from a distance. If I shake myself up, cool. If I shake you up, even better. Not gratuitously--what's the point in that?--but to set what I know, or think I know, on end and realize, "Well, doesn't it look different from this side!" My work is neither sexually explicit nor graphically violent. Let's face it - your imaginations will come up with things far worse than anything I could write, no matter how descriptive. Besides, it's just not my thing. I live in Connecticut with my supportive husband Ed, a cat named Ruby who might just think she's a dog, and an epileptic Australian shepherd named Holly who isn't quite certain anymore who she is, except she knows she loves her mommy.
This entry was posted in Uncategorized. Bookmark the permalink.

8 Responses to Live With It

  1. Debbie Struthers says:

    I found your article quite enlightening from one who has a family member going through Alzheimer’s. Naturally most of us can identify with forgetting your code for the phone as I have forgot passwords and such before. I can see how you might be on guard and concerned about possibly having the same thing. I hope you will relax some and try not to worry. Many of us in this busy world are trying to juggle so much, that sometimes we do forget things we have done many times.
    Debbie

  2. dementedgirl says:

    I am more scared about it happening to my husband (20 years older than me) than I am myself – if it’s me, I will blow out my brains sooner than become what my MIL is today. If it’s my husband, we currently have an agreement that in the same circumstances he will do the same, but would be a cruel wife to hold him to that agreement! And at what point would we go through with it…???

  3. Elaine says:

    Thank you from the bottom of my heart and soul for putting into words a fear I have never voiced in a cohesive way. I tease about it, laugh off those moments and try not to dwell on what might be. You have hit the fear head on and expressed it exactly how I feel it. Thank you dear friend!! XO

  4. I can understand your concern, Melissa. We all have those memory lapses especially as we get older and they are scary. But I believe you are taking the right approach in learning as much as you can about how to deal with this problem.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s